Class of 2016
At the age of 18, Kristen Powers became legally able to test herself for the gene for Huntington's Disease, a neurodegenerative disease that, over time, destroys an individual's ability to walk, talk, and reason. It's the take-no-prisoners condition that took her mother's life when Powers was just 17 years old, and Powers had a 50% chance of inheriting it.
While many at-risk adults refuse to get tested, choosing ignorance over a death sentence, Powers decided to undergo the emotionally draining genetic testing process in order to find answers and raise awareness.
"The stigmatization of the illness makes it hard to talk about. Fifty years ago, [people with Huntington's] were put away in insane asylums," Powers says. "It's incredibly important to normalize the disease; that alone can help a family affected."
Thanks to a successful Indiegogo campaign, Powers was able to produce "Twitch," a documentary that explains the science through interviews with experts and activists, and draws back the curtain on the Powers family's experience. The film premiered at Stanford during Powers' freshman year and has since been screened in 17 cities.
Powers, a communications major, discovered that she does not carry the gene for Huntington's Disease. She plans to continue working toward a cure on the advocacy side and pursue a career in the non-profit or social enterprise sector.